Helping Oklahomans with Epilepsy

Epilepsy is Not a MENTAL illness
Epilepsy is Not a CURSE
Epilepsy is Not CONTAGIOUS
Epilepsy is a Disorder, Not a DISEASE!

What's New

 
 

Go To The Events Page For Details

Events

  • April 20th, 2015
    • 11:00am: People with Disabilities Awareness Day
  • April 21st, 2015
    • 8:00am: On The Road Family Perspective Conference FREE
  • April 30th, 2015
    • 5:30pm: On The Road Family Perspective FREE

   

 

Donate Now

 
 

Your Donations Are Appreciated

We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Emergency Seizure Medication Assistance & Discount Drug Cards
2) Education About Seizures For Schools, Communities & Work Force
3) Monthly Newsletter
4) Website With Resources & Epilepsy Facebook
5) Annual Epilepsy Camp & Health Fairs To Educate
6) Support Groups Throughout Oklahoma



GiveSmartOKC
You May Also Donate By Check,
Please Make Payable To:

Epilepsy Association of Oklahoma
711 Stanton L. Young Blvd. Suite 550
Oklahoma City, Ok. 73104
   

 

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Welcome to the Home of the Epilepsy Association of Oklahoma

 
 
Mrs. Jenniafer Walters - President  A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone


Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”
 

OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:

A – S – A – P
A - Raise Awareness
S - Service To Community
A - Advance / Fundraising
P - Participate

  • Emergency Seizure Medication Assistance & Discount Drug Cards
  • Education About Seizures For Schools, Communities & Work Force
  • Office Staff & Monthly Newsletter
  • Website With Resources & Epilepsy Facebook
  • Annual Epilepsy Camp & Health Fairs To Educate
  • Support Groups Throughout Oklahoma

I call epilepsy a “stealth” disease, but it’s difficult to imagine how so few people can know about a disease that affects so many. For example, few people know:

  •  Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
  •  In America, Epilepsy is as common as Breast Cancer, and takes as many lives.
  • Almost 500 new cases of Epilepsy are diagnosed every day in the United States.
  •  Epilepsy affects 50,000,000 people worldwide.
  •  One in 100 people will develop Epilepsy.
  •  One in 10 people will suffer a seizure in their lifetime.
  •  This year another 200,000 people in the U.S. will be diagnosed with Epilepsy.
  •  Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
  •  30% of those diagnosed are children.
  •  Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors.
  •  For many soldiers suffering traumatic brain injury on the battlefield, Epilepsy will be a long-term consequence.
  •  In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
  •  In over 30% of patients, seizures cannot be controlled with treatment.
  •  Uncontrolled seizures may lead to brain damage and death.
  •  Up to 50,000 Americans die each year from seizures and related causes.
  •  The mortality rate among people with Epilepsy is two to three times higher than the general population.
  •  Risk of sudden death among those with Epilepsy is twenty-four times greater.
  •  Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.
  •  Historically, epilepsy research has been under-funded. Each year NIH spends $30 billion of medical research, but just ½ of 1% is spent on epilepsy.
  •  The Federal government spends much less on Epilepsy research compared to other diseases, many which affect fewer people.
  •  St Valentine is the patron saint of people with epilepsy!

KATIE'S LAW MIGHT COME TO OKLAHOMA WITH YOUR HELP
KATIE’S LAW HB 2154
HAS NOW PASSED SENATE VOTE
46 - 0


We have some very exciting news to share with our Epilepsy Association Family! We are very excited to announce a bill we hope will help children with difficult to control seizures receive a new treatment option. HB 2154, Katie's Law, passed committee this week. This bill allows children who suffer from severe seizure disorders under medical supervision to take an oil containing high CBD and low THC. Here is what it is and isn't.

What it is, is an opportunity for children who are otherwise without hope to take an experimental medicine that may give them hope where there is none. It is a nonintoxicating substance with no threat of abuse because it would contain at most .3 THC. It is supported by the Oklahoma Medical Association and the Oklahoma Bureau of Dangerous Drugs. It is similar to legislation passed in other conservative states like Utah and South Carolina. And for children like our daughter Katie Dodson it is likely their last hope.

What it is not, is a full blown medical marijuana bill that will allow children (or anyone else for that matter) to smoke cannibis or get high.

This bill has passed in other conservative states, can be supported whether you are for or against medical marijuana and is unequivocally supported by the medical field that works in pediatric epilepsy. It is without a doubt the right thing to do. We believe the entire legislature will have the courage to pass it this year.

WE NEED YOUR HELP!!! We are calling for action today, as HB 2154 may go before a vote of the OK State Legislators at any time. Please CONTACT your legislators (State Representatives and Senators) and tell them you support HB 2154 also called "Katie's Law" and as their constituent, you want their support for this Bill as well. Please take just a few minutes to do this, and share with your friends, families, and neighbors. Every vote will count and you have the chance to be a part of changing Oklahoma History!!!

Below we have posted a site where you can put in your address and it will tell you who your state representative and your state senator are and how to contact them. http://oklegislature.gov

You can also read HB 2154, Katie's Law, in full here:

http://webserver1.lsb.state.ok.us/cf_pdf/2015-16%20INT/hB/HB2154%20INT.PDF

PARTIAL-ONSET SEIZURE STUDY




ON THE ROAD AGAIN
   
SoonerSUCCESS
On The Road Family Perspective Conference
1700 W. Shawnee
Muskogee, Oklahoma
Boulevard Christian Church
Tuesday, April 21st, 2015


On the road in Muskogee, Oklahoma
(click on image to open PDF flyer)

Register Online at : https://soonersuccessmuskogeeotr.eventbrite.com

For Questions Contact:

Sally Selvidge
Family Outreach Coordinator
Sooner SUCCESS
University of Oklahoma Health Sciences Center/Child Study Center
Department of Behavioral and Developmental Pediatrics
940 NE 13th, Ste. 3890
OKC OK 73104
405-812-5076-Cell
ON THE ROAD AGAIN
   
SoonerSUCCESS
Sand Springs Mini Transition
924 E. Charles Page Blvd
Tulsa Technology Center
Sand Springs Campus
Thursday, April 30th, 2015

On the road in Sand Springs, Oklahoma
(click on image to open PDF flyer)

Transition services for your child/family member who have a disability or special need to help make their future more meaningful and productive.

Register Online at
https://soonersuccesssandspringsotr.eventbrite.com

For Questions Contact:

Sally Selvidge
Family Outreach Coordinator
Sooner SUCCESS
University of Oklahoma Health Sciences Center/Child Study Center
Department of Behavioral and Developmental Pediatrics
940 NE 13th, Ste. 3890
OKC OK 73104
405-812-5076-Cell

EASTER SEALS OF OKLAHOMA

Now Offering an Inclusive Kindergarten Class

Easter Seals Oklahoma will be offering an inclusive kindergarten class starting in the fall of 2015. The full day program will be appropriate for the age and developmental level of each child - giving them one more year to learn and be challenged in a small typical classroom setting before transitioning into a public or private school.

The teaching will be based on knowledge of how young children develop and learn. The learning environment will foster all areas of development: intellectual, language, physical and social; and provides the challenge for children to learn according to their individual abilities and growth patterns. All children will continue to have access to our onsite Peer Integration Program, occupational therapy, and speech therapy.

For more information on the new kindergarten class or enrollment, please contact Samantha Pascoe at 239-2525.

 

Our last FREE Parent Training of the school year is on April 9th: It's Time to Pee - Potty Training - Call 239-2525 to RSVP!

FREE Autism Screenings

11am-2pm
Easter Seals Oklahoma

 

For children ages 6 months to 6 years. Must call 239-2525 for an appointment.

April 17th  -  May 15th
June 19th  -  July 17th

April is Autism Awareness month!
 

Summer Social
Skills Group

Starts June 8, 2015
Easter Seals Oklahoma
 

8 week course for children ages 4 to 9 years who struggle with social deficits. More...
 

Mon and Wed: 10am-11am
Tues and Thurs: 10am-11am

BACB Supervised Independent Fieldwork & Supervised Practicum
 
Easter Seals Oklahoma provides BACB approved Supervised Independent Fieldwork for qualified individuals wishing to obtain Board Certified Behavior Analyst (BCBA) or Board Certified Assistant Behavior Analyst (BCaBA) certification. Do you want to make a difference in the lives of children and their families receiving Applied Behavior Analysis methodologies?
 
If you are interested in being supervised by our BCBA, please visit www.bacb.com and be sure that you meet the requirements outlined to begin your supervised fieldwork.
 
Contact Mia Dianda MS, BCBA at 239-2525 ext. 20 for more information.

 

 

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DISABILITIES AWARENESS DAY 2015
Disabilities Awareness Day 2015

People with Disabilities Awareness Day 2015 is Monday, April 20, 2015 at the State Capitol from noon till 4:30 p.m. Your organization is invited to have an exhibit booth at the event.

Each year awareness day gives people with disabilities and advocates like you a chance to talk with decision-makers who can preserve or expand services that make a critical difference in the lives of Oklahomans with disabilities.

Last year, more than 900 people participated in this free event, which is hosted by the Oklahoma Department of Rehabilitation Services and friends. This year, our goal is to have 901 people in attendance. To do that we need for you and your organization’s members to come and be a part of this important event.
COMMUNITY HEALTH CHARITIES
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH CHARITIES

BUILD CULTURES OF COMMUNITY INVOLVEMENT

FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
 “EPILEPSY ASSOCIATION OF OKLAHOMA”

CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY

CHC – PUBLIC SECTOR CAMPAIGN #8007
OKLAHOMA STATE

CBD OIL STUDY

Learn more about what CBD Oil is and what it
can do to help those with life-threating seizure diseases.
Please watch the video link below and find out what you can
do to participate in this study.

If you would like to be apart of this STUDY please contact
Oklahoma State Representative Jon Echols, District 88, at the link below.

JonEchols@okhouse.gov


http://www.news9.com/category/116601/video-page?autostart=true&clipId=10480634

CBD Oil

END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.
ZEUS AND THALIA ARE PURPLE PROUD

WE ARE PURPLE PROUD - WHAT ABOUT YOU?
 
Purple Proud
SUPPORT
EPILEPSY ASSOCIAION OF OKLAHOMA

Photo courtesy of Tanya Beaven

 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to help give a voice to people living with epilepsy. To get more people talking about epilepsy!