Helping Oklahomans with Epilepsy

Epilepsy is Not a MENTAL illness
Epilepsy is Not a CURSE
Epilepsy is Not CONTAGIOUS
Epilepsy is a Disorder, Not a DISEASE!

What's New

 
 

Go To The Events Page For Details

Events

  • September 8th, 2014
    • 6:00pm: Epilepsy Association
  • September 11th, 2014
    • 12:00pm: Training For Families.... 2nd Thursday of each Month
  • September 16th, 2014
    • 8:00am: On the Road Family Perspective Conference
  • October 21st, 2014
    • 8:00am: On the Road Family Perspective Conference
  • November 1st, 2014
    • 10:00am: 2nd Annual Epilepsy Walk
  • November 18th, 2014
    • 8:00am: On the Road Family Perspective Conference

   

 

Donate Now

 
 

Your Donations Are Appreciated

We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Speaker’s bureau.
2) Medication assistance.
3) Support groups.
4) Annual Epilepsy Youth Camp
5) The Newsletter.
6) Association meetings.



GiveSmartOKC
You May Also Donate By Check,
Please Make Payable To:

Epilepsy Association of Oklahoma
711 Stanton L. Young Blvd. Suite 550
Oklahoma City, Ok. 73104
   

 

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Welcome to the Home of the Epilepsy Association of Oklahoma

 
 
Mrs. Jenniafer Walters - President  A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone


Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”
 

F
OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:
  • Continue our speaker’s bureau.
  • Education about seizures for schools and communities
  • Emergency seizure medication assistance
  • Support groups in as many cities/towns in Oklahoma as possible
  • Annual Epilepsy Youth Camp; Health Fair booths
  • Quarterly newsletter and state-wide Association meetings.

I call epilepsy a “stealth” disease, but it’s difficult to imagine how so few people can know about a disease that affects so many. For example, few people know:

  •  Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
  •  In America, Epilepsy is as common as Breast Cancer, and takes as many lives.
  • Almost 500 new cases of Epilepsy are diagnosed every day in the United States.
  •  Epilepsy affects 50,000,000 people worldwide.
  •  One in 100 people will develop Epilepsy.
  •  One in 10 people will suffer a seizure in their lifetime.
  •  This year another 200,000 people in the U.S. will be diagnosed with Epilepsy.
  •  Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
  •  30% of those diagnosed are children.
  •  Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors.
  •  For many soldiers suffering traumatic brain injury on the battlefield, Epilepsy will be a long-term consequence.
  •  In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
  •  In over 30% of patients, seizures cannot be controlled with treatment.
  •  Uncontrolled seizures may lead to brain damage and death.
  •  Up to 50,000 Americans die each year from seizures and related causes.
  •  The mortality rate among people with Epilepsy is two to three times higher than the general population.
  •  Risk of sudden death among those with Epilepsy is twenty-four times greater.
  •  Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.
  •  Historically, epilepsy research has been under-funded. Each year NIH spends $30 billion of medical research, but just ½ of 1% is spent on epilepsy.
  •  The Federal government spends much less on Epilepsy research compared to other diseases, many which affect fewer people.
  •  St Valentine is the patron saint of people with epilepsy!

OKEPILEPSY ASSOCIATION OF OKLAHOMA
SECOND ANNUAL WALK
NEW HOPE
NEW BEGINNING

Here is your chance to join us this year for our second annual walk in support for the

Oklahoma Epilepsy Association of Oklahoma

Saturday ~ November 1, 2014
10:00AM - Swag Bag Pickup
11:00AM - Walk Begins

Click on the poster image above and download the
Walk Poster and post at your place of business.
Sign Up today at the link below:

www.signmeup.com/102258

CBD OIL STUDY

Learn more about what CBD Oil is and what it
can do to help those with life-threating seizure diseases.
Please watch the video link below and find out what you can
do to participate in this study.

If you would like to be apart of this STUDY please contact
Oklahoma State Representative Jon Echols, District 88, at the link below.

JonEchols@okhouse.gov


http://www.news9.com/category/116601/video-page?autostart=true&clipId=10480634

CBD Oil

FAMILY PERSPECTIVE CONFERENCE

FREE FREE FREE FREE FREE FREE FREE

FAMILY PERSPECTIVE CONFERENCE*
Register online at:

https://soonersucesspoteauotr.eventbrite.com


Family Perspective Conference
FREE PARENT TRAINING

Trainings are the 2nd Thursday of each month at noon.
All of the trainings listed below are FREE! A light lunch will be provided.
Trainings start September 2014.
Provider Training available upon request:


Free Parent Training
  • Behavioral Teaching Strategies
  • FBA (Functional Behavioral Assessment): Looking at the bigger picture
  • strategies for teaching new skills & reducing challenging behaviors
  • Effective Inclusion
  • Understanding Behavior
  • Using Reinforcement Procedures Effectively
  • Teaching New Skills
  • Strategies for Reducing Challenging Behaviors (1)
  • Strategies for Reducing Challenging Behaviors (2)
  • Communication Intervention Strategies
  • It’s Time to Pee!!! (toilet training)
  • TBD
2014 LEADERSHIP INSTITUTE

JOINING FORCES
SUPPORTING FAMILY/PROFESSIONAL
PARTNERSHIPS



For more information, contact Doris Erhart at
doris-erhart@oklahomafamilynetwork.org
or call: 405-271-5072 877-871-5072
Registration is
FREE
Morning Coffee with Snack and Boxed Lunch Provided
Registration Deadline is Thursday, August 28, 2014*
To register online go to:
http://ada2014institute.eventbrite.com
IMPORTANT INjFORMATION
MEDCARE UNITED CLOSED

Sorry for any inconvenience, you need to contact MedCare United ASAP at 405-271-6278 or 405-249-6653 to make arrangements. MedCare United will NO LONGER take calls after August 1, 2014.

The Epilepsy Association of Oklahoma continues working hard to seek other avenues for medication assistance programs. Under RESOURCES on our website at the bottom of the page, we have some resources for you.

You may also contact us here at that Epilepsy Association of Oklahoma offices at 405-271-3232. We have a discount prescription card we can send to you. We also have discount cards for Topamax ER and Trileptal your cost will be $15 a month.

Sorry for any inconvenience this has caused.

Sincerely,

President of the Epilepsy Association
Jenniafer Walters

 

OKLAHOMA NEEDS YOUR HELP

 

TARC
http://www.ddadvocacy.net/ddadvocacy/default.asp

All it takes is ONE.
Many Oklahomans with intellectual and developmental disabilities have no friends or family involvement and the only people in their lives are paid to be there. TARC is a private non profit that provides advocacy for people with developmental disabilities. We have a statewide program that matches volunteers one on one to people with developmental disabilities who receive full-time services through Disability Service Division of DHS and live in the community. Our volunteers see them at least once a month, provide friendship, attend their yearly planning meeting, and assistance with decision making. One of our primary goals is to reduce their isolation and help them have happier and safer lives.
There are no special skills required and volunteers will be provided training as well as ongoing support from a Volunteer Coordinator.

We currently have about 15 individuals in the Oklahoma City area in need of a volunteer and about 150 statewide. Some of the service recipients have been waiting for up to 5 or 6 years for a volunteer. We believe one person can change the world for someone with a developmental disability.

Are you the One?

Holly Howard
TARC Volunteer Coordinator
405-557-1878 or 405-760-6439
hhoward@ddadvocacy.net

 

BARTLESVILLE TRIATHLON
~~~ TRI TO STOP SEIZURES ~~~

IF YOU LIKE TO RUN, SWIM AND BIKE – PLEASE! COME AND PARTICIPATE

JULY 12, 2014 BARTLESVILLE OK. AT SOONER PARK POOL

RACERS WILL RECEIVE T-SHIRT & A BAG FULL OF STUFF

When you Register you can save 15% by enter this
CODE: OKEPIL


REGISTRATION:


https://earlysignup.com/bartlesvilletri

INDIVIDUAL
  • $45.00 Early Sign Up (1/21 at 12:00 AM through 6/24 at 08:00 AM)
  • $45.00 Late Sign Up (6/24 at 08:00 AM through 7/11 at 08:00 AM)
TEAM RELAY
  • $90.00 Early Sign Up - 2 People (1/21 at 12:00 AM through 6/24 at 08:00 AM)
  • $135.00 Early Sign Up - 3 People (1/21 at 12:00 AM through 6/24 at 08:00 AM)
  • $90.00 Late Sign Up - 2 People (6/24 at 08:00 AM through 7/11 at 08:00 AM)
  • $135.00 Late Sign Up - 3 People (6/24 at 08:00 AM through 7/11 at 08:00 AM)
SPONSOR DONATION - THANK YOU FOR  YOUR DONATIONS
  • Triathlete 0 - 150.00 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
  •  Bronze 150 - 250 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
  •  Silver 251 - 350 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
  •  Gold 351 - 500 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.
ZEUS AND THALIA ARE PURPLE PROUD

WE ARE PURPLE PROUD - WHAT ABOUT YOU?
 
Purple Proud
SUPPORT
EPILEPSY ASSOCIAION OF OKLAHOMA

Photo courtesy of Tanya Beaven

PARTIAL-ONSET SEIZURES EPILEPSY STUDY


Epilepsy Study


Volunteers needed
CONTACT PERSON
For Questions
Velocity
JILL RYAN
PRACTICE ADMINISTRATOR

405-231-2951
BOOK BY SHIRLEY BRACKEN
She Laughs With Demons
Congratulations- Shirley Bracken

The Epilepsy Association of Oklahoma is very lucky to know this amazing women.
I'm proud to say Shirley Bracken is part of our team here at the Epilepsy Association too.
Shirely runs a support group in Ponca City and speaks wherever she can on epilepsy.
Did I mention she is an author now!
Shirley Bracken has written an amazing book on her journey and having epilepsy.

NOW AVAILABLE IN PAPERBACK BOOK!
ORDER THROUGH THE EPILPESY ASSOCIATION OF OKLAHOMA
DIRECLY AT THE LINK BELOW

THANK FOR YOUR SUPPORT!
To find: She Laughs With Demons
It's an ebook: ebook sites, Amazon, Barnes & Noble and Kobo.
Price is around $9.99

Epilepsy demons have names: Ignorance, Intolerance, Discrimination and Apathy. Epilepsy isn’t a pretty disorder. People would rather turn their heads and pretend not to see a seizure. Shirley shares her struggles with Epilepsy through stories and poems. She mixes perseverance with splashes of laughter; despair with splurges of hope. Through her journey, she keeps her faith. She knows that today the Demons will not win.

Shirley will donate a portion of all sells from her book to the
Epilepsy Association of Oklahoma, "THANK YOU"!

Proud of you Shirley!

YOUNG ADULTS SUPPORT GROUP MEETING

YOUNG ADULTS
EPILEPSY SUPPORT GROUP


Epilepsy Young Adults


Date: Sunday September 14th
Time: 2:00PM
Place : Bricktown Starbucks
Address: 200 S Oklahoma Ave #100, Oklahoma City, OK
Contact: Lindsay Hammer
About: Epilepsy Support Group/ Hope to see you all there!! Tell and invite a friend!

If you have any questions please contact: Lindsay Hammer 309-706-8362
 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to help give a voice to people living with epilepsy. To get more people talking about epilepsy!