Helping Oklahomans with Epilepsy

Epilepsy is Not a MENTAL illness
Epilepsy is Not a CURSE
Epilepsy is Not CONTAGIOUS
Epilepsy is a Disorder, Not a DISEASE!

What's New

 
 

Go To The Events Page For Details

Events

  • February 3rd, 2015
    • 5:30pm: Can a Change in Diet Help Control Seizures? FREE
  • February 4th, 2015
    • 3:00pm: Diabetes Caucus
  • February 7th, 2015
    • 8:30am: Inclusion and Curriculum Modification to Meet Student Goals
  • February 18th, 2015
    • 8:00am: Joining Forces for a Good Life FREE
  • March 10th, 2015
    • 8:00am: On The Road Family Perspective Conference FREE
  • March 26th, 2015
    • Epilepsy Awareness Day
  • March 28th, 2015
    • 7:00am: 5 K Run @ Owasso OK.
  • April 20th, 2015
    • 11:00am: People with Disabilities Awareness Day

   

 

Donate Now

 
 

Your Donations Are Appreciated

We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Speaker’s bureau.
2) Medication assistance.
3) Support groups.
4) Annual Epilepsy Youth Camp
5) The Newsletter.
6) Association meetings.



GiveSmartOKC
You May Also Donate By Check,
Please Make Payable To:

Epilepsy Association of Oklahoma
711 Stanton L. Young Blvd. Suite 550
Oklahoma City, Ok. 73104
   

 

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Welcome to the Home of the Epilepsy Association of Oklahoma

 
 
Mrs. Jenniafer Walters - President  A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone


Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”
 

OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:
  • Continue our speaker’s bureau.
  • Education about seizures for schools and communities
  • Emergency seizure medication assistance
  • Support groups in as many cities/towns in Oklahoma as possible
  • Annual Epilepsy Youth Camp; Health Fair booths
  • Quarterly newsletter and state-wide Association meetings.

I call epilepsy a “stealth” disease, but it’s difficult to imagine how so few people can know about a disease that affects so many. For example, few people know:

  •  Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
  •  In America, Epilepsy is as common as Breast Cancer, and takes as many lives.
  • Almost 500 new cases of Epilepsy are diagnosed every day in the United States.
  •  Epilepsy affects 50,000,000 people worldwide.
  •  One in 100 people will develop Epilepsy.
  •  One in 10 people will suffer a seizure in their lifetime.
  •  This year another 200,000 people in the U.S. will be diagnosed with Epilepsy.
  •  Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
  •  30% of those diagnosed are children.
  •  Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors.
  •  For many soldiers suffering traumatic brain injury on the battlefield, Epilepsy will be a long-term consequence.
  •  In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
  •  In over 30% of patients, seizures cannot be controlled with treatment.
  •  Uncontrolled seizures may lead to brain damage and death.
  •  Up to 50,000 Americans die each year from seizures and related causes.
  •  The mortality rate among people with Epilepsy is two to three times higher than the general population.
  •  Risk of sudden death among those with Epilepsy is twenty-four times greater.
  •  Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.
  •  Historically, epilepsy research has been under-funded. Each year NIH spends $30 billion of medical research, but just ½ of 1% is spent on epilepsy.
  •  The Federal government spends much less on Epilepsy research compared to other diseases, many which affect fewer people.
  •  St Valentine is the patron saint of people with epilepsy!

CAN A CHANGE IN DIET HELP CONTROL SEIZURES?
Epilepsy affects an estimated 7,000 Oklahoma Children.
You are not alone.
As the caregiver of a child with epilepsy, we know you are
searching for answers to difficult questions.
We want to help.


Please join us for a lecture,
“Can a Change in Diet Help Control Seizures?”
by Dr. Eric Kossoff and a panel discussion with several of
the country’s leading pediatric epileptologists


Tuesday, February 3rd
5:30 – 7:00 PM
Children’s Hospital
Samis Conference Center
Rainbolt Auditorium
1200 Children’s Avenue | Oklahoma City | 73104
RSVP
Connie Bond | (405) 271 4113 | connie-bond@ouhsc.edu


PANEL
Dr. Eric Kossoff
Professor of Neurology and Pediatrics, John Hopkins University School of Medicine,
Program Director, Child Neurology Residency Program and
Medical Director, John Hopkins Ketogenic Diet Center
Dr. Cherie Herren
Assistant Professor of Neurology, Pediatric EpileptologistMedical Director, OU Ketogenic Diet Program

*Childcare available upon request.
INCLUSION AND CURRICULUM MODIFICATION
February 7, 2015 from 8:30 a.m.- 4:30 p.m.

James L. Henry Auditorium at Integris Baptist Medical Center
3300 NW Expressway Oklahoma City, OK
Cost: $15/person with lunch & $5/person without lunch
Join DSACO for a full-day workshop about
inclusion and curriculum modification that will provide
practical information and techniques for parents, educators,
therapist and anyone who works with children with special needs.


INCLUSION AND CURRICULUM MODIFICATION
(click on image to open PDF)

SAVE THE DATE
JOINING FORCES
SUPPORTING FAMILY PROFESSIONAL PARTNERSHIPS
CONFERENCE


Sieze The Moment 2015
(click on image to open image)

SIEZE THE MOMENT 2015
2015
SIEZE THE MOMENT
STONE CANYON
OWASSO, OKLAHOMA


Sieze The Moment 2015
(click on image to open PDF flyer)

To register for this great annual event please click on the link below

http://www.oksandf.com/calendarOKSF/details.php?race=9212
DISABILITIES AWARENESS DAY 2015
Disabilities Awareness Day 2015


People with Disabilities Awareness Day 2015 is Monday, April 20, 2015 at the State Capitol from noon till 4:30 p.m. Your organization is invited to have an exhibit booth at the event.

Each year awareness day gives people with disabilities and advocates like you a chance to talk with decision-makers who can preserve or expand services that make a critical difference in the lives of Oklahomans with disabilities.

Last year, more than 900 people participated in this free event, which is hosted by the Oklahoma Department of Rehabilitation Services and friends. This year, our goal is to have 901 people in attendance. To do that we need for you and your organization’s members to come and be a part of this important event.
COMMUNITY HEALTH CHARITIES
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH CHARITIES

BUILD CULTURES OF COMMUNITY INVOLVEMENT

FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
 “EPILEPSY ASSOCIATION OF OKLAHOMA”

CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY

CHC – PUBLIC SECTOR CAMPAIGN #8007
OKLAHOMA STATE

CBD OIL STUDY

Learn more about what CBD Oil is and what it
can do to help those with life-threating seizure diseases.
Please watch the video link below and find out what you can
do to participate in this study.

If you would like to be apart of this STUDY please contact
Oklahoma State Representative Jon Echols, District 88, at the link below.

JonEchols@okhouse.gov


http://www.news9.com/category/116601/video-page?autostart=true&clipId=10480634

CBD Oil

FREE PARENT TRAINING
  • Behavioral Teaching Strategies
  • FBA (Functional Behavioral Assessment): Looking at the bigger picture
  • strategies for teaching new skills & reducing challenging behaviors
  • Effective Inclusion
  • Understanding Behavior
  • Using Reinforcement Procedures Effectively
  • Teaching New Skills
  • Strategies for Reducing Challenging Behaviors (1)
  • Strategies for Reducing Challenging Behaviors (2)
  • Communication Intervention Strategies
  • It’s Time to Pee!!! (toilet training)
  • TBD

Inclusion with Peer Integration Program

Mia Dianda, Director of Medical Rehabilitation and Board Certified Behavior Analyst, utilizes Applied Behavior Analysis (ABA) principles and teaches children to improve their ability to make and keep friends, develop self-confidence, and behave more appropriately in a typical environment.  Behavioral reinforcement is utilized to promote rule compliance, participation, and use of appropriate social skills.  Skills are taught to teachers and parents to ensure effective translation in the child’s natural environment at school and home. 

Program is available for children ages 2 to 10. Individualized Functional Behavior Assessments, Behavior Intervention Plans, and school and home visits are available for all children in the program. 

Provider training by Mia is also available.  She has trained on the topics of Behavioral Teaching Strategies, Functional Behavioral Assessments, and Effective Inclusion.

more...

FREE Parent Trainings

12pm-1pm
Easter Seals Oklahoma
 

11/13  Teaching New Skills
01/08  Strategies for Reducing
           Challenging Behaviors (1)
02/12  Strategies for Reducing
           Challenging Behaviors (2)

FREE Autism Screenings

11am-2pm
Easter Seals Oklahoma

 

For children ages 6 months to 6 years. Must call 239-2525 for an appointment.

November 21st  -  December 19th
January 16th  -  February 20th

 

 

Our mailing address is:

Easter Seals Oklahoma

701 NE 13th Street

Oklahoma City, OK 73104

 

END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.
ZEUS AND THALIA ARE PURPLE PROUD

WE ARE PURPLE PROUD - WHAT ABOUT YOU?
 
Purple Proud
SUPPORT
EPILEPSY ASSOCIAION OF OKLAHOMA

Photo courtesy of Tanya Beaven

 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to help give a voice to people living with epilepsy. To get more people talking about epilepsy!