We now take credit card donations through PayPal and GiveSmartOKC.
Checks that you send should be made out to: The
Epilepsy Association of Oklahoma. Donations are fully tax deductible and will be
used to fund our programs:
1) Emergency Seizure Medication Assistance &
Discount Drug Cards 2) Education About Seizures For Schools, Communities &
Work Force 3) Monthly Newsletter 4) Website With Resources & Epilepsy
Facebook 5) Annual Epilepsy Camp & Health Fairs To Educate 6) Support
Groups Throughout Oklahoma
You May Also Donate By Check, Please Make Payable To:
Association of Oklahoma 11212 N. May Ave. Suite 108 Oklahoma City, OK.
Like Us on Facebook
Welcome to the Home of the
Epilepsy Foundation of Oklahoma
A tongue has NO bone but it can
BREAK a heart.
So, watch what you say...to someone
Since 1978, the Epilepsy Association of
Oklahoma has been
incorporated as a nonprofit health agency with the mission of helping
Oklahomans who have epilepsy and their families.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not
feel very empowering.”
OUR MISSION STATEMENT Our mission of the Epilepsy Foundation of Oklahoma is to:
A – S – A – P
A - Raise Awareness
S - Service To Community
A - Advance / Fundraising
P - Participate
Emergency Seizure Medication Assistance & Discount Drug Cards
Education About Seizures For Schools, Communities & Work Force
Office Staff & Monthly Newsletter
Website With Resources & Epilepsy Facebook
Annual Epilepsy Camp & Health Fairs To Educate
Support Groups Throughout Oklahoma
EPILEPSY – PREVENT, CONTROL & CURE EPILEPSY THROUGH SERVICES...
LET THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA HELP YOU!
Epilepsy is a condition that is not well understood and often not well addressed, despite being widely recognized
Epilepsy accounts for about $15.5 billion in direct costs (medical) and indirect costs (lost or reduced earnings and productivity) each year. Adults with epilepsy report worse mental health, more cognitive impairment, and barriers in social participation. People with epilepsy also experience health and social disparities, such as worse health-related quality of life and low socioeconomic status.
65 MILLION: Number of people around the world who have epilepsy.
3 MILLION: Number of people in the United States who have epilepsy.
1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.
BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.
150,000: Number of new cases of epilepsy in the United States each year
ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.
6 OUT OF 10: Number of people with epilepsy where the cause is unknown.
You can’t swallow your tongue during a seizure. It's physically impossible.
You should NEVER force something into the mouth of someone having a seizure. Absolutely not! Forcing something into the mouth of someone having a seizure is a good way to chip teeth, cut gums, or even break someone's jaw. The correct first aid is simple. Just gently roll the person on one side, support their head, protect from injury, and make sure their breathing is okay.
DON'T restrain someone having a seizure. Most seizures end in seconds or a few minutes and will end on their own. You can protect the person from injury by following simple first-aid guidelines.
Epilepsy is NOT contagious. You simply can't catch epilepsy from another person.
Anyone can develop epilepsy. Seizures start for the first time in people over age 65 almost as often as it does in children. Seizures in the elderly are often the after effect of other health problems like stroke and heart disease.
Most people with epilepsy CAN DO the same things that people without epilepsy can do. However, some people with frequent seizures may not be able to work, drive, or may have problems in other parts of their life.
Even with today's medication, epilepsy CANNOT be cured. Epilepsy is a chronic medical problem that for many people can be successfully treated. Unfortunately, treatment doesn't work for everyone. AT LEAST 1 million people in the United States have uncontrolled epilepsy. There is still an urgent need for more research, better treatments and a cure.
Epilepsy is NOT rare. There are more than twice as many people with epilepsy in the U.S. as the number of people with cerebral palsy (500,000), muscular dystrophy (250,000), multiple sclerosis (350,000), and cystic fibrosis (30,000) combined. Epilepsy can occur as a single condition, or may be seen with other conditions affecting the brain, such as cerebral palsy, intellectual disability, autism, Alzheimer's, and traumatic brain injury.
You CAN die from epilepsy. While death in epilepsy doesn't happen frequently, epilepsy is a very serious condition and individuals do die from seizures. The most common cause of death is SUDEP or Sudden Unexpected Death in Epilepsy. While there is a lot we still don’t know about SUDEP, experts estimate that one out of every 1000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the U.S. each year occur from these seizure emergencies.
What happens in a seizure may look different from one person to another. However, seizures are usually stereotypic, which means the same things or behaviors tend to occur in a person each time they have a seizure. The seizure behavior may be inappropriate for the time and place, but it is unlikely to cause harm to anyone.
People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically.
People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically
Authored by: Patricia O. Shafer, RN, MN | Joseph I. Sirven, MD on 7/2013
CAN PROJECT IN OKLAHOMA
CAN PROJECT IN OKLAHOMA YES You CAN Be Apart Of This Project
Community Action Network Mission:
The core principle of the Community Action Network for Epilepsy is to establish volunteer groups across the country. The groups will support individuals living with epilepsy by enabling and advancing the mission of the Epilepsy Foundation. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Involvement where you live and work creates partnerships that raise awareness about epilepsy and the programs the Foundation provides. You have the opportunity to support those with epilepsy by bringing programs and services directly into your communities. Whether it’s creating awareness, informing people about services, discovering new fundraising opportunities, or participating in innovation and public policy advocacy, these powerful Community Action Networks build lasting relationships in your neighborhood.
Jonathan’s Story: Promise to Livy
"Jonathan Scheinman leads the national Community Action Network program"
If You Would Like To Be Apart Of EPILEPSY AWARENESS In Oklahoma, Please Contact the Epilepsy Foundation Of Oklahoma Office To Learn More:
Epilepsy Association of Oklahoma Merges With The Epilesy Foundation of America
Update from the Executive Director of the NEW "Epilepsy Foundation of Oklahoma"
Welcome and thank you for visiting the Epilepsy Foundation of Oklahoma Website, Newsletter and Facebook page. We are honored that you have joined us, and I hope you will find all the information you need here.
This year 2016, the Epilepsy Foundation of Oklahoma celebrated a great victory. After 38 years of operating independently we became a chapter of the Epilepsy Foundation of America. With their unwavering support and assistance we'll be able to make tremendous strides in our community.
In my role as Executive Director, I have the privilege of working with wonderful doctors and members of our community who strive to improve the lives of those living with epilepsy every day. I will continue my fight in raising AWARENESS, SERVICE to our community, our ADVANCEMENT in fundraising and PARTICIPATION in activities throughout the state, with the help and support of the Epilepsy Foundation of America.
We are committed to operating with an abundance of energy to bring our members information and referral services they need. We are passionate about educating the community about seizures and epilepsy, in order to reduce the stigma that many individuals face.
Thank you for your on going support throughout the years and always remember YOUR NOT ALONE and we're here to help.
I'm very excited for the future of the new Epilepsy Foundation of Oklahoma
PROUD SPONSORS OF THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA
THANK YOU FOR YOUR SUPPORT!
Share our video on your Facebook page and ask your family and friends to do the same.
I challenge each of you to make a video funny or personal, share your video with us.
A special THANK YOU to Lisa King & Brittany Foglesong for helping with the video.
And dont forget to nominate more people in your video challenge.
Knowledge of Epilepsy and Risk Factors Survey
Knowledge of Epilepsy and Risk Factors Survey
To help us continue enhancing epilepsy.com, we are asking our users for a better understanding of what you know about the impact of epilepsy and seizures. Your answers to this survey will help us build a better website to help you manage your seizures.
Like most girls her age, Brynlee likes to play dress-up, play with dolls and play with her brothers and sisters. When Brynlee was 2 years old she began having seizures and was later diagnosed with epilepsy. Since that time she has been on 6 different anti-seizure medications and gone through numerous tests and hospitalizations and we still do not have effective seizure control. She has multiple types of seizures at night and during the day. We have decided to get Brynlee a service dog. The dog will alert us to seizures at night and help her if she has a seizure at school or away from home. The training of a service dog is time consuming and very expensive. Because of this we will be accepting sponsors and holding various fundraising events over the next few months. Thank you for your prayers, support and encouragement!
PR2 SYSTEMS FUNDRAISING FOR THE EPILEPSY FOUNDATION OF OKLAHOMA
pr2TM Systems is a nutritional supplement company, dedicated to the health and performance of athletes who compete at any level of intensity, as well as individuals interested in maximizing their health and nutrition. pr2TMproducts consist of great tasting, whole protein and vitamin supplements, and were developed by a former Olympic, collegiate and professional athletic trainer.
Daniel L. Dodson, Ph.D., A.T.,C. has developed pr2 products based on his research and experience with athletes and their specific recovery needs. pr2TM products are designed to promote efficient recovery from exercise and daily activities by strengthening the immune system and supporting the health of muscles and joints. Whether by capsule form or powder in a ready-to-mix drink formula, pr2TM provides a superior blend of nutrients, including top-quality whey protein isolate as sole source of whole protein, an exceptional blend of amino acids and an outstanding vitamin profile, including Vitamin E, D, B6, B12, folic acid and biotin. pr2TM Systems has always been committed to the highest standard of quality products.
OKEpilepsy -45% off your purchase (no donation for this one, it is for the epilepsy families that would like to try the product)
Epilepsy -15% off your purchase (10% of Gross Purchase will be donated to the Epilepsy Association/Foundation of Oklahoma) PR2 Members
Joe Dorman: has his discount code set up too, YES That Joe Dorman!
Joe -15% off your purchase (10% of Gross Purchase will be donated to the Epilepsy Association/Foundation of Oklahoma)
Any Questions Please Contact:
Daniel Dodson PhD, ATC
PR2 Systems, LLC
COMMUNITY HEALTH CHARITIES
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH
BUILD CULTURES OF COMMUNITY INVOLVEMENT
FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
“EPILEPSY ASSOCIATION OF OKLAHOMA”
CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY
CHC – PUBLIC SECTOR CAMPAIGN #8007
Thank you Freddy's, they have opened the EAO fundraiser for all day. If you go to this location and mention I am here for the Epilepsy Association Fundraiser, they will donate 15% of your purchase to us and you dont need a flyer.
Epilepsy research received $129 million in federal funding in 2013.
That's $59 per person with epilepsy. There are more with EPILEPSY than
all the people with Multiple Sclerosis + Muscular Dystrophy +
Parkinson’s disease put together, but EPILEPSY only receives 31% of what
they receive in federal research funding. Our intent is certainly not to
take research funding from any other disease, because they all need more
support! We just want EPILEPSY to get a fairer share. We journey to D.C.
each year to join our Epilepsy Foundation in advocating for more $ for
research. Like and Share to show you want EPILEPSY to get a more equal
share. #EndEpilepsy — with Ryan Thomas.
Percentage of Adults With and Without Epilepsy
Who Have Difficulty Getting Health Carea
VNS MONTHLY CONFERENCE CALL
EPILEPSY ASSOCIAION OF OKLAHOMA
This is an AMAZING site for people with EPILEPSY. If you
have been recently diagnosed or been living with EPILEPSY for a
while, PLEASE visit this site. You're NOT alone.
Talk About It.org created by Greg Grunberg (star of LOVE BITES,
HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top
health care experts to end the misperceptions and misunderstanding
about epilepsy and seizure disorders. Greg Grunberg, whose eldest
son has epilepsy, has dedicated his time, energy and passion to
working toward ending the stigma around epilepsy and bringing public
focus on the need to find a cure and to help give a voice to
people living with epilepsy. To get more people talking about