Helping Oklahomans with Epilepsy

Epilepsy is Not a MENTAL illness
Epilepsy is Not a CURSE
Epilepsy is Not CONTAGIOUS
Epilepsy is a Disorder, Not a DISEASE!

What's New

 
 

Go To The Events Page For Details

Events

  • April 28th, 2014
    • 6:30pm: Lawton OK. Support Group Meeting for Epilepsy, Parents & Caregivers
  • April 29th, 2014
    • 8:00am: On The Roard Family Conference
  • May 6th, 2014
    • 8:00am: On the Road Family Conference

   

 

Donate Now

 
 

Your Donations Are Appreciated

We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Speaker’s bureau.
2) Medication assistance.
3) Support groups.
4) Annual Epilepsy Youth Camp
5) The Newsletter.
6) Association meetings.



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Welcome to the Home of the Epilepsy Association of Oklahoma

 
 
Mrs. Jenniafer Walters - President  A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone


Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.

Medication Assistance



“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”
 


OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:
  • Continue our speaker’s bureau.
  • Education about seizures for schools and communities
  • Emergency seizure medication assistance
  • Support groups in as many cities/towns in Oklahoma as possible
  • Annual Epilepsy Youth Camp; Health Fair booths
  • Quarterly newsletter and state-wide Association meetings.

I call epilepsy a “stealth” disease, but it’s difficult to imagine how so few people can know about a disease that affects so many. For example, few people know:

  •  Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
  •  In America, Epilepsy is as common as Breast Cancer, and takes as many lives.
  • Almost 500 new cases of Epilepsy are diagnosed every day in the United States.
  •  Epilepsy affects 50,000,000 people worldwide.
  •  One in 100 people will develop Epilepsy.
  •  One in 10 people will suffer a seizure in their lifetime.
  •  This year another 200,000 people in the U.S. will be diagnosed with Epilepsy.
  •  Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
  •  30% of those diagnosed are children.
  •  Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors.
  •  For many soldiers suffering traumatic brain injury on the battlefield, Epilepsy will be a long-term consequence.
  •  In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
  •  In over 30% of patients, seizures cannot be controlled with treatment.
  •  Uncontrolled seizures may lead to brain damage and death.
  •  Up to 50,000 Americans die each year from seizures and related causes.
  •  The mortality rate among people with Epilepsy is two to three times higher than the general population.
  •  Risk of sudden death among those with Epilepsy is twenty-four times greater.
  •  Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.
  •  Historically, epilepsy research has been under-funded. Each year NIH spends $30 billion of medical research, but just ½ of 1% is spent on epilepsy.
  •  The Federal government spends much less on Epilepsy research compared to other diseases, many which affect fewer people.
  •  St Valentine is the patron saint of people with epilepsy!

PATIENT EDUCATION PROGRAM


(Select to view PDF)

Please join us for a free
PATIENT EDUCATION PROGRAM
for people with seizure disorders and their families
FEATURED TOPIC:
Available Treatment Options for People
with Di cult-to-Treat Epilepsy
PRESENTER:
Salman Zubair, M.D.
Learn about
• Refractory epilepsy
• Available treatment options
• VNS Therapy®
Light refreshments will be provided.
Reservations are not required but are appreciated. Please
register to Julie Hollis at (800) 332-1375 extension 2657.
Sponsored by Cyberonics, Inc.
END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.
ZEUS AND THALIA ARE PURPLE PROUD

WE ARE PURPLE PROUD - WHAT ABOUT YOU?
 
Purple Proud
SUPPORT
EPILEPSY ASSOCIAION OF OKLAHOMA

Photo courtesy of Tanya Beaven

SIBSHOP TRAINING

SibShop Training:

For More Information:

Robyn Boswell 405-271-5700 ext. 47801


SibShop Training

http://www.siblingsupport.org

SUPPORT GROUP INVITATION

Ever feel like:
“I’m the only one that knows what it is like to have Seizures”
“How could this happen to us?
“How do other families deal with this?”

Lawton Neurologist
Invite you to attend a
Support Group for patients and families living with Epilepsy and learn how others manage

When: April 28, 2014
Time: 6:30 pm-8:30pm
Where: Southwest Medical Center – Centennial Conference Room
5602 SW Lee Blvd Lawton, OK 73505

View Larger Map
Who: Everyone that lives with Epilepsy
Facilitator: Jenniafer Walters,
President of Oklahoma Epilepsy Association
Stephen Carroll, Board Member of Oklahoma Epilepsy Association and Therapeutic Consultant for Cyberonics
Todd Harris, Board Member of Oklahoma Epilepsy Association and Medial Sales Specialist for Eisai
Refreshments will be provided by Cyberonics, Inc.
SOONER SUCCESS

Family Perspective Conference

Sooner Success
Registration Form
SoonerSUCCESS Tulsa On The Road
https://soonersuccesstulsaontheroad.eventbrite.com

PARTIAL-ONSET SEIZURES EPILEPSY STUDY


Epilepsy Study


PLEASE GO AND VOTE FOR OUR OKLAHOMA HERO AVAGRACE SPENCER

Ava has epilepsy and just went through more TUFF times, her family had a house fire and her wheelchair was in the driveway
and someone decided to STEAL it from their driveway. PLEASE login and vote for this BEAUTIFUL ANGEL who can truly use this.

THANK YOU!

Jenniafer Walters
Epilepsy Association

NATIONAL MOBILITY AWARENESS MONTH

National Mobility Awareness Month


http://www.mobilityawarenessmonth.com/entrant/avagrace-spencer-midwest-city-ok/
Volunteers needed
CONTACT PERSON
For Questions
Velocity
JILL RYAN
PRACTICE ADMINISTRATOR

405-231-2951
BOOK BY SHIRLEY BRACKEN
She Laughs With Demons
Congratulations- Shirley Bracken

The Epilepsy Association of Oklahoma is very lucky to know this amazing women.
I'm proud to say Shirley Bracken is part of our team here at the Epilepsy Association too.
Shirely runs a support group in Ponca City and speaks wherever she can on epilepsy.
Did I mention she is an author now!
Shirley Bracken has written an amazing book on her journey and having epilepsy.

To find: She Laughs With Demons
It's an ebook: ebook sites, Amazon, Barnes & Noble and Kobo.
Price is around $9.99

Epilepsy demons have names: Ignorance, Intolerance, Discrimination and Apathy. Epilepsy isn’t a pretty disorder. People would rather turn their heads and pretend not to see a seizure. Shirley shares her struggles with Epilepsy through stories and poems. She mixes perseverance with splashes of laughter; despair with splurges of hope. Through her journey, she keeps her faith. She knows that today the Demons will not win.

Shirley will donate a portion of all sells from her book to the
Epilepsy Association of Oklahoma, "THANK YOU"!

Proud of you Shirley!

YOUNG ADULTS SUPPORT GROUP MEETING

YOUNG ADULTS MEETING

Epilepsy Young Adults


Next Meeting To Be Announced Soon
Hosted by: Olivia Kavanaugh 405-919-4968
ScanMed QR Offer Is HERE!!!
ScanMedQR Thank you for supporting the Epilepsy Association of Oklahoma. Thank you to Scan Med QR for this technology. By going through the Epilepsy Association of Oklahoma and using our promo code, your cost is only $19.99

For each profile made ScanMed QR will make a donation to the Epilepsy Association of Oklahoma. Don’t forget the promo code at checkout “EPILEPSYOK”.

IMPORTANT INFORMATION:
On the pricing page there will be EAO BUNDLE click it, Don’t Forget Promo Code “EPILEPSYOK” then select size of Sports Band, SMALL, MEDIUM, or LARGE and click ADD TO CART. Print the sizing chart by clicking on the image below for sizing reference.
ScanMedQR Sizing Chart
With the recent tornadoes, it's become even more painfully obvious that we must be prepared! Even for those without chronic illness, you never know when the unexpected can happen; why not have your vital, life-saving electronic health record with you.

ScanMed QR allows you to carry your electronic health record with you with a wallet card, a tag for your purse, backpack, etc., a tag that can be tied into shoelaces and/or a silicone sports band. By scanning your unique Quick Response (QR) code displayed on these items, your medical history, medications and dosages, emergency contact names and numbers and much more is available to First Responders in seconds. When your information changes, go online, make the revisions and save; that's it! Carry the card, wear the band or both.

Silicone sports band will have the Epilepsy Association logo on it. Purchase instructions will be posted shortly to order your new ScanMedQR bracelet when they become available.

If you have any questions, don't hesitate to call the Epilepsy Association of Oklahoma office 405-271-3232.

Thank you for supporting epilepsy and the Epilepsy Association of Oklahoma.

God Bless!

Jenniafer Walters - President
Epilepsy Association of Oklahoma
 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to to help give a voice to people living with epilepsy. To get more people talking about epilepsy!