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Your Donations Are Appreciated
We now take credit card donations through PayPal and GiveSmartOKC.
Checks that you send should be made out to:
Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be
used to fund our programs:
1) Speaker’s bureau.
3) Support groups.
4) Annual Epilepsy Youth Camp
6) Association meetings.
OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:
||A tongue has NO bone but it can
BREAK a heart.
So, watch what you say...to someone
Since 1978, the Epilepsy Association of Oklahoma has been
incorporated as a nonprofit health agency with the mission of helping
Oklahomans who have epilepsy and their families.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not
feel very empowering.”
- Continue our speaker’s bureau.
- Education about seizures for schools and communities
- Emergency seizure medication assistance
- Support groups in as many cities/towns in Oklahoma as possible
- Annual Epilepsy Youth Camp; Health Fair booths
- Quarterly newsletter and state-wide Association meetings.
I call epilepsy a “stealth” disease, but it’s difficult to imagine how so
few people can know about a disease that affects so many. For example, few
* Epilepsy affects over 3 million Americans of all ages – more than Multiple
Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease
* In America, Epilepsy is as common as Breast Cancer, and takes as many
*Almost 500 new cases of Epilepsy are diagnosed every day in the United
* Epilepsy affects 50,000,000 people worldwide.
* One in 100 people will develop Epilepsy.
* One in 10 people will suffer a seizure in their lifetime.
* This year another 200,000 people in the U.S. will be diagnosed with
* Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
* 30% of those diagnosed are children.
* Epilepsy can develop at any age and can be a result of genetics, stroke,
head injury, and many other factors.
* For many soldiers suffering traumatic brain injury on the battlefield,
Epilepsy will be a long-term consequence.
* In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
* In over 30% of patients, seizures cannot be controlled with treatment.
* Uncontrolled seizures may lead to brain damage and death.
* Up to 50,000 Americans die each year from seizures and related causes.
* The mortality rate among people with Epilepsy is two to three times higher
than the general population.
* Risk of sudden death among those with Epilepsy is twenty-four times
* Epilepsy results in an estimated annual cost of $15.5 billion in medical
costs and lost or reduced earnings and production.
* Historically, epilepsy research has been under-funded. Each year NIH
spends $30 billion of medical research, but just ½ of 1% is spent on
* The Federal government spends much less on Epilepsy research compared to
other diseases, many which affect fewer people.
* St Valentine is the patron saint of people with epilepsy!
|MERRY CHRISTMAS FROM
EVERYONE AT THE EPILEPSY ASSOCIATION OF OKLAHOMA
Quote form George Matthew Andrew-
"Let us remember that the Christmas heart is a giving heart, a wide open
heart that thinks of others first. The birth of the baby Jesus stands as
the most significant event in all history, because it has meant the
pouring into a sick world of the healing medicine of love which has
transformed all manner of hearts for almost two thousand years...
Underneath all the bulging bundles is this beating Christmas heart."
GOD BLESS US ALL!
Please remember the less fortunate.
|THANK YOU OKLAHOMA
The Epilepsy Association had their FIRST Epilepsy Walk in Oklahoma
November 2, 2013. The Epilepsy Association mission has always been to
help the people of Oklahoma. Since 1978 the Epilepsy Association of
Oklahoma has been incorporated as a nonprofit health agency with the
mission of helping Oklahoman's who have epilepsy and their families.
Epilepsy Association has been helping people of Oklahoma with emergency
seizure medication, youth camp, educational programs, training on
seizures, pharmacy discount card, health fairs, support groups and
social media with website and facebook. Our FIRST Epilepsy Walk was
amazing, the lord blessed us with beautiful weather at Bluff Creek Park
in OKC. The trail at Bluff Creek Park is only 1.5 miles and paved for
wheelchairs with a half way mark for anyone who gets tired can head back
to the 3 very nice shelters. We believe their was about 130-150 people
who attended this event to raise awareness for epilepsy and support
people who have epilepsy. The Epilepsy Association had some amazing Top
Sponsors this year with Lundbeck, Eisai Inc., Cyberonics VNS, AAA of
Oklahoma and the Lynn Institute. The other sponsors were UPS #4785,
Community Development OK Department of Commerce, County Line Bakery,
Nothing Bundt Cake, Panera Bread, Jersey Mikes, Buffalo Wild Wings,
Chipotle, BluCoffee, B J’s Restaurant, Diabetes of Oklahoma, Med Care
United, S & S Textile, Heartline, Neuro Resources, Synergy HomeCare,
Community Health Charities, New Leash on Life, OK Family Network,
SibShop, Diabetes of Oklahoma and Kevin Hill with K&K Media. These
groups came out to support Epilepsy and put up a booth to help support
Epilepsy Association and give useful information to the Oklahoman's,
they were BluCoffee, Heartline, Neuro Resources, Oklahoma Family
Network, Lynn Institute, New Leash on Life, Community Health Charities,
Diabetes of Oklahoma, Synergy HomeCare, Lundbeck, Cyberonics VNS and
Eisia. For the FIRST Epilepsy Walk in Oklahoma, I think this was an
amazing turn out. The Epilepsy Association is making grounds in our
community, we look forward to the 2nd Epilepsy Walk for 2014, we'll have
more sponsors from Oklahoma and more people from Oklahoma attending to
raise awareness of Epilepsy.Because approximately 50 million have
epilepsy world wide with 3.5 million in the US and 1 out of 26 people
will develop Epilepsy, with hundreds being diagnosed daily. There are
more people with Epilepsy then Lou Gehrig's Disease, MS and Parkinson's
Disease combined together, but more funding for each of those
individually than for Epilepsy. Our government only put 1/2 % to 1 % for
funding to study Neurology and Epilepsy. So we need to Talk about
Epilepsy and do are best to raise awareness for Epilepsy. People who
have Epilepsy feel so alone, scared, hurt, ashamed, confused, angry and
NO one should ever feel that way.
Along with our FIRST Epilepsy Walk in Oklahoma for 2013 we also had our
FIRST 5K Run in Owasso OK., was apart of The Candlelight Concert Series
for Epilepsy, with 1 in Bristow OK., 1 in OKC. & 1 in Fort Sills. We
also had our FIRST Triathlon in Bartlesville OK., Poker Run in OKC. and
had our annual Music Fundraiser in OKC., finishing the year with our
FIRST Piano Fundraiser in Sayre OK. and our Epilepsy Dinner in OKC. The
Epilepsy Dinner, was for the Epilepsy Association so they could give a
big "THANK YOU" and let these people of Oklahoma know we appreciation
each and everyone of them, who help the Epilepsy Association raise funds
or awareness in Oklahoma for 2013. So for 2014 we'll keep climbing and
keep working for the people of Oklahoma, personally I'm very excited for
2014. Because we have surrounded our selves with great people here at
the Epilepsy Association. Please visit our website for helpful
information and events throughout the year www.okepilepsy.org.
We're already working with people of Oklahoma and EAO staff getting our
events ready for 2014. Look forward to seeing each and everyone of you
at one or more of these events for EPILEPSY SUPPORT & AWARENESS in 2014!
Epilepsy Association of Oklahoma
|CELEBRATE EPILEPSY AWARENESS
|YES, It's EPILEPSY
If You Would Like To Be A Proud Supporter
of EPILEPSY AWARENESS Like Me?
Please Make A $25 Dollar Donation Through PAYPAL
You'll Receive A "THANK YOU" Letter With Our Tax ID #
OOH! Did I Mention?
You'll Also Receive ONE Of Our EPILEPSY WALK T-SHIRT
From 2013 Too.
"Thank You" Oklahoma For Your Support
This Year, It's Been AMAZING!
|WHISKEY CAKE KITCHEN BAR
Whiskey Cake Kitchen Bar:
WHERE- OKC. located in Penn Square Parking Lot off of N.W. Expressway
Manager- Kenneth Hardiman
Whiskey Cake is having a fundraiser in the month of November.
Kenneth will be taking pictures of guys Mustaches and posting on their
Facebook, if Kenneth WINS he’ll be making a $2000 donation to the
PLEASE tell your family and friends to stop by Whiskey Cake and have
your MUSTACHE posted on Whiskey Cake Facebook. “Thank you!” to Whiskey
Cake Kitchen & Bar, Kenneth Haridman and always Oklahoman’s for your
|YOUNG ADULTS SUPPORT GROUP
YOUNG ADULTS MEETING
|THANK YOU OKLAHOMA
I would like to personally thank the State of Oklahoma.
From the kind hearts of Oklahoman’s to Madison’s special need of a
seizure dog...they raised over $13,000.
Here are the results of your kindness.
Stella is a 18 m/o Long Haired German Shepard,
She has had her for 1 week and is all ready hitting on her seizure
activity at night.
God Bless You All!
Madison & Stella
|IVORY N' OVATIONS
What if the time you spent practicing your instrument could be turned
money for a good cause??
At Ivory ‘N Ovations, that’s what we are
doing. Beginning September 9, each piano student will be asking friends
and family to sponsor them per day of prac-tice. The students will keep
track of their practice and keep a record each week of the amount of
practice and money earned from their sponsors. Not only will the
students improve their piano skills, but they will also be raising money
for a good cause. What is our cause? The Epilepsy Association of
Now Through September 9, 2013
The Fundraiser Runs From
September 23 – December 9, 2013
ScanMed QR Offer Is HERE!!!
||Thank you for supporting the Epilepsy Association of Oklahoma.
Thank you to Scan Med QR for this technology. By going through the
Epilepsy Association of Oklahoma and using our promo code, your cost
is only $19.99
For each profile made ScanMed QR will make a
donation to the Epilepsy Association of Oklahoma. Don’t forget the
promo code at checkout “EPILEPSYOK”.
On the pricing page there will be EAO BUNDLE click
it, Don’t Forget Promo Code “EPILEPSYOK” then
select size of Sports Band, SMALL, MEDIUM,
or LARGE and click ADD TO CART. Print the sizing chart by clicking on the image below
for sizing reference.
With the recent tornadoes, it's become even more painfully
obvious that we must be prepared! Even for those without chronic
illness, you never know when the unexpected can happen; why not have
your vital, life-saving electronic health record with you.
allows you to carry your electronic health record with you with a
wallet card, a tag for your purse, backpack, etc., a tag that can be
tied into shoelaces and/or a silicone sports band. By scanning your
unique Quick Response (QR) code displayed on these items, your
medical history, medications and dosages, emergency contact names
and numbers and much more is available to First Responders in
seconds. When your information changes, go online, make the
revisions and save; that's it! Carry the card, wear the band or
Silicone sports band will have the Epilepsy Association logo on it.
Purchase instructions will be posted shortly to order your new
ScanMedQR bracelet when they become available.
If you have any questions, don't hesitate to call the Epilepsy
Association of Oklahoma office 405-271-3232.
Thank you for supporting epilepsy and the Epilepsy Association of
Jenniafer Walters - President
Epilepsy Association of Oklahoma
||This is an AMAZING site for people with EPILEPSY. If you
have been recently diagnosed or been living with EPILEPSY for a
while, PLEASE visit this site. You're NOT alone.
Talk About It.org created by Greg Grunberg (star of LOVE BITES,
HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top
health care experts to end the misperceptions and misunderstanding
about epilepsy and seizure disorders. Greg Grunberg, whose eldest
son has epilepsy, has dedicated his time, energy and passion to
working toward ending the stigma around epilepsy and bringing public
focus on the need to find a cure and to to help give a voice to
people living with epilepsy. To get more people talking about