Helping Oklahomans with Epilepsy

Epilepsy is Not a MENTAL illness
Epilepsy is Not a CURSE
Epilepsy is Not CONTAGIOUS
Epilepsy is a Disorder, Not a DISEASE!

What's New

 
 

Go To The Events Page For Details

Events

  • September 16th, 2014
    • 8:00am: On the Road Family Perspective Conference
  • October 21st, 2014
    • 8:00am: On the Road Family Perspective Conference
  • November 1st, 2014
    • 10:00am: 2nd Annual Epilepsy Walk
  • November 18th, 2014
    • 8:00am: On the Road Family Perspective Conference

   

 

Donate Now

 
 

Your Donations Are Appreciated

We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Speaker’s bureau.
2) Medication assistance.
3) Support groups.
4) Annual Epilepsy Youth Camp
5) The Newsletter.
6) Association meetings.



GiveSmartOKC
You May Also Donate By Check,
Please Make Payable To:

Epilepsy Association of Oklahoma
711 Stanton L. Young Blvd. Suite 550
Oklahoma City, Ok. 73104
   

 

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Welcome to the Home of the Epilepsy Association of Oklahoma

 
 
Mrs. Jenniafer Walters - President  A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone


Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”
 

F
OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:
  • Continue our speaker’s bureau.
  • Education about seizures for schools and communities
  • Emergency seizure medication assistance
  • Support groups in as many cities/towns in Oklahoma as possible
  • Annual Epilepsy Youth Camp; Health Fair booths
  • Quarterly newsletter and state-wide Association meetings.

I call epilepsy a “stealth” disease, but it’s difficult to imagine how so few people can know about a disease that affects so many. For example, few people know:

  •  Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
  •  In America, Epilepsy is as common as Breast Cancer, and takes as many lives.
  • Almost 500 new cases of Epilepsy are diagnosed every day in the United States.
  •  Epilepsy affects 50,000,000 people worldwide.
  •  One in 100 people will develop Epilepsy.
  •  One in 10 people will suffer a seizure in their lifetime.
  •  This year another 200,000 people in the U.S. will be diagnosed with Epilepsy.
  •  Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
  •  30% of those diagnosed are children.
  •  Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors.
  •  For many soldiers suffering traumatic brain injury on the battlefield, Epilepsy will be a long-term consequence.
  •  In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
  •  In over 30% of patients, seizures cannot be controlled with treatment.
  •  Uncontrolled seizures may lead to brain damage and death.
  •  Up to 50,000 Americans die each year from seizures and related causes.
  •  The mortality rate among people with Epilepsy is two to three times higher than the general population.
  •  Risk of sudden death among those with Epilepsy is twenty-four times greater.
  •  Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.
  •  Historically, epilepsy research has been under-funded. Each year NIH spends $30 billion of medical research, but just ½ of 1% is spent on epilepsy.
  •  The Federal government spends much less on Epilepsy research compared to other diseases, many which affect fewer people.
  •  St Valentine is the patron saint of people with epilepsy!

IMPORTANT INFORMATION
MEDCARE UNITED CLOSED

Sorry for any inconvenience, you need to contact MedCare United ASAP at 405-271-6278 or 405-249-6653 to make arrangements. MedCare United will NO LONGER take calls after August 1, 2014.

The Epilepsy Association of Oklahoma continues working hard to seek other avenues for medication assistance programs. Under RESOURCES on our website at the bottom of the page, we have some resources for you.

You may also contact us here at that Epilepsy Association of Oklahoma offices at 405-271-3232. We have a discount prescription card we can send to you. We also have discount cards for Topamax ER and Trileptal your cost will be $15 a month.

Sorry for any inconvenience this has caused.

Sincerely,

President of the Epilepsy Association
Jenniafer Walters

 

IF YOU WOULD LIKE TO BE HEARD
AND HAVE A VOICE ON THIS MATTER
PLEASE SIGN!

My name is Sonja Steinmetz. My son, Jonas, suffers from seizures due to Angelman Syndrome. I am trying to get Oklahoma to legalize an oil extract from a strain of marijuana that produces no "high" (also known as Charlotte's Web) for those with epilepsy. I have a petition started at http://www.moveon.org. Here is the link:

Legalize CBD oil for Oklahoma Kids with Epilepsy

http://petitions.moveon.org/sign/legalize-cbd-oil-for.fb44?source=c.fb.ty&r_by=10383905

All signatures count, and could help so many. Please sign and share.

KTUL Tulsa Oklahoma Article

http://www.ktul.com/story/25446454/mother-fights-for-medication-for-her-son

 

OKLAHOMA NEEDS YOUR HELP

 

TARC
http://www.ddadvocacy.net/ddadvocacy/default.asp

All it takes is ONE.
Many Oklahomans with intellectual and developmental disabilities have no friends or family involvement and the only people in their lives are paid to be there. TARC is a private non profit that provides advocacy for people with developmental disabilities. We have a statewide program that matches volunteers one on one to people with developmental disabilities who receive full-time services through Disability Service Division of DHS and live in the community. Our volunteers see them at least once a month, provide friendship, attend their yearly planning meeting, and assistance with decision making. One of our primary goals is to reduce their isolation and help them have happier and safer lives.
There are no special skills required and volunteers will be provided training as well as ongoing support from a Volunteer Coordinator.

We currently have about 15 individuals in the Oklahoma City area in need of a volunteer and about 150 statewide. Some of the service recipients have been waiting for up to 5 or 6 years for a volunteer. We believe one person can change the world for someone with a developmental disability.

Are you the One?

Holly Howard
TARC Volunteer Coordinator
405-557-1878 or 405-760-6439
hhoward@ddadvocacy.net

 

BARTLESVILLE TRIATHLON
~~~ TRI TO STOP SEIZURES ~~~

IF YOU LIKE TO RUN, SWIM AND BIKE – PLEASE! COME AND PARTICIPATE

JULY 12, 2014 BARTLESVILLE OK. AT SOONER PARK POOL

RACERS WILL RECEIVE T-SHIRT & A BAG FULL OF STUFF

When you Register you can save 15% by enter this
CODE: OKEPIL


REGISTRATION:


https://earlysignup.com/bartlesvilletri

INDIVIDUAL
  • $45.00 Early Sign Up (1/21 at 12:00 AM through 6/24 at 08:00 AM)
  • $45.00 Late Sign Up (6/24 at 08:00 AM through 7/11 at 08:00 AM)
TEAM RELAY
  • $90.00 Early Sign Up - 2 People (1/21 at 12:00 AM through 6/24 at 08:00 AM)
  • $135.00 Early Sign Up - 3 People (1/21 at 12:00 AM through 6/24 at 08:00 AM)
  • $90.00 Late Sign Up - 2 People (6/24 at 08:00 AM through 7/11 at 08:00 AM)
  • $135.00 Late Sign Up - 3 People (6/24 at 08:00 AM through 7/11 at 08:00 AM)
SPONSOR DONATION - THANK YOU FOR  YOUR DONATIONS
  • Triathlete 0 - 150.00 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
  •  Bronze 150 - 250 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
  •  Silver 251 - 350 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
  •  Gold 351 - 500 (1/21 at 12:00 AM through 1/15 at 12:00 AM)
CAMP CAVETT 2014

Camp Cavett 2014
(click image to view)

Camp Cavett is the Cavett Kids Foundation’s largest camp, and best of all, it is FREE of charge! Transportation is provided to and from camp. Campers meet at OU Medical Center to catch the buses. At check-in, parents are able to meet with the medical staff to ensure that all of their medical needs will be met. At Camp Cavett, campers participate in different activities including American Idol, a carnival with the
WORLD’S LARGEST INFLATABLE WATER SLIDE
, horseback riding, archery, high ropes, arts and crafts in the Art Room, paintball, rock climbing and rappelling, power pole, water sports, a camp dance, a salon where campers can be pampered after long days in the sun, and two days of fishing led by Bass and Striper fishermen. While participating in these activities, campers step outside of their comfort zones and work together to overcome their physical and mental challenges.

Register Today
Is your camper registered?


Camp Cavett is just 2.5 weeks away!! Is YOUR camper registered yet? Be sure to secure your campers spot with early registration!

***You can easily register your camper for multiple (qualifying) camps at one time. So get online & get registered today!

Visit www.cavettkids.org to register online or contact us at (405) 271-2271 opt.2

CAMP CAVETT KICKOFF PARTY!
Get your party pants on & come join the fun!


Join us for our annual Camp Cavett Kickoff Party! Learn more about Cavett Kids, meet the staff, meet our campers & even register for upcoming camps!

We will have drinks, snacks, a DJ, karaoke, crafts & more! Campers & Families welcome!

When? Friday, June 27th from 11:00-2:00
Where? OU Children's Atrium, 6th Floor
END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.
ZEUS AND THALIA ARE PURPLE PROUD

WE ARE PURPLE PROUD - WHAT ABOUT YOU?
 
Purple Proud
SUPPORT
EPILEPSY ASSOCIAION OF OKLAHOMA

Photo courtesy of Tanya Beaven

PARTIAL-ONSET SEIZURES EPILEPSY STUDY


Epilepsy Study


Volunteers needed
CONTACT PERSON
For Questions
Velocity
JILL RYAN
PRACTICE ADMINISTRATOR

405-231-2951
BOOK BY SHIRLEY BRACKEN
She Laughs With Demons
Congratulations- Shirley Bracken

The Epilepsy Association of Oklahoma is very lucky to know this amazing women.
I'm proud to say Shirley Bracken is part of our team here at the Epilepsy Association too.
Shirely runs a support group in Ponca City and speaks wherever she can on epilepsy.
Did I mention she is an author now!
Shirley Bracken has written an amazing book on her journey and having epilepsy.

NOW AVAILABLE IN PAPERBACK BOOK!
ORDER THROUGH THE EPILPESY ASSOCIATION OF OKLAHOMA
DIRECLY AT THE LINK BELOW

THANK FOR YOUR SUPPORT!
To find: She Laughs With Demons
It's an ebook: ebook sites, Amazon, Barnes & Noble and Kobo.
Price is around $9.99

Epilepsy demons have names: Ignorance, Intolerance, Discrimination and Apathy. Epilepsy isn’t a pretty disorder. People would rather turn their heads and pretend not to see a seizure. Shirley shares her struggles with Epilepsy through stories and poems. She mixes perseverance with splashes of laughter; despair with splurges of hope. Through her journey, she keeps her faith. She knows that today the Demons will not win.

Shirley will donate a portion of all sells from her book to the
Epilepsy Association of Oklahoma, "THANK YOU"!

Proud of you Shirley!

YOUNG ADULTS SUPPORT GROUP MEETING

YOUNG ADULTS
EPILEPSY SUPPORT GROUP


Epilepsy Young Adults


Date: Sunday July 27th
Time: 2:00PM
Place : Bricktown Starbucks
Address: 200 S Oklahoma Ave #100, Oklahoma City, OK
Contact: Lindsay Hammer
About: Epilepsy Support Group/ Hope to see you all there!! Tell and invite a friend!

If you have any questions please contact: Lindsay Hammer 309-706-8362
 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to help give a voice to people living with epilepsy. To get more people talking about epilepsy!