Go To The Events Page For Details
- October 21st, 2014
- 8:00am: On the Road Family Perspective Conference
- November 1st, 2014
- 10:00am: 2nd Annual Epilepsy Walk
- November 18th, 2014
- 8:00am: On the Road Family Perspective Conference
Your Donations Are Appreciated
We now take credit card donations through PayPal and GiveSmartOKC.
Checks that you send should be made out to:
Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be
used to fund our programs:
1) Speaker’s bureau.
3) Support groups.
4) Annual Epilepsy Youth Camp
6) Association meetings.
You May Also Donate By Check,
Please Make Payable To:
Association of Oklahoma
711 Stanton L. Young Blvd. Suite 550
City, Ok. 73104
||A tongue has NO bone but it can
BREAK a heart.
So, watch what you say...to someone
Since 1978, the Epilepsy Association of Oklahoma has been
incorporated as a nonprofit health agency with the mission of helping
Oklahomans who have epilepsy and their families.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not
feel very empowering.”
OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:
- Continue our speaker’s bureau.
- Education about seizures for schools and communities
- Emergency seizure medication assistance
- Support groups in as many cities/towns in Oklahoma as possible
- Annual Epilepsy Youth Camp; Health Fair booths
- Quarterly newsletter and state-wide Association meetings.
I call epilepsy a “stealth” disease, but it’s difficult to imagine how so
few people can know about a disease that affects so many. For example, few
- Epilepsy affects over 3 million Americans of all ages – more than Multiple
Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease
- In America, Epilepsy is as common as Breast Cancer, and takes as many
- Almost 500 new cases of Epilepsy are diagnosed every day in the United
- Epilepsy affects 50,000,000 people worldwide.
- One in 100 people will develop Epilepsy.
- One in 10 people will suffer a seizure in their lifetime.
- This year another 200,000 people in the U.S. will be diagnosed with
- Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
- 30% of those diagnosed are children.
- Epilepsy can develop at any age and can be a result of genetics, stroke,
head injury, and many other factors.
- For many soldiers suffering traumatic brain injury on the battlefield,
Epilepsy will be a long-term consequence.
- In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
- In over 30% of patients, seizures cannot be controlled with treatment.
- Uncontrolled seizures may lead to brain damage and death.
- Up to 50,000 Americans die each year from seizures and related causes.
- The mortality rate among people with Epilepsy is two to three times higher
than the general population.
- Risk of sudden death among those with Epilepsy is twenty-four times
- Epilepsy results in an estimated annual cost of $15.5 billion in medical
costs and lost or reduced earnings and production.
- Historically, epilepsy research has been under-funded. Each year NIH
spends $30 billion of medical research, but just ½ of 1% is spent on
- The Federal government spends much less on Epilepsy research compared to
other diseases, many which affect fewer people.
- St Valentine is the patron saint of people with epilepsy!
|OKEPILEPSY ASSOCIATION OF
SECOND ANNUAL WALK
Here is your chance to join us this year for our second annual walk in
support for the
Oklahoma Epilepsy Association of Oklahoma
Saturday ~ November 1, 2014
10:00AM - Swag Bag Pickup
11:00AM - Walk Begins
Click on the poster image above and download the
Walk Poster and post at your place of business.
Sign Up today at the link below:
|COMMUNITY HEALTH CHARITIES
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH
BUILD CULTURES OF COMMUNITY INVOLVEMENT
FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
“EPILEPSY ASSOCIATION OF OKLAHOMA”
CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY
CHC – PUBLIC SECTOR CAMPAIGN #8007
|CBD OIL STUDY
Learn more about what CBD Oil is and what it
can do to help those with life-threating seizure diseases.
Please watch the video link below and find out what you can
do to participate in this study.
If you would like to be apart of this STUDY please contact
Oklahoma State Representative Jon Echols, District 88, at the link
FREE FREE FREE FREE FREE FREE
Tuesday, October 21, 2014, Gordon
Cooper Technology Center
One John C. Bruton Blvd.,
Registration (Light Breakfast) and Welcome
FAMILY PERSPECTIVE CONFERENCE*
Register online at:
(Click Image To Open Registration
|FREE PARENT TRAINING
|Trainings are the 2nd Thursday of each month at noon.
All of the trainings listed below are FREE! A light lunch will be
Trainings start September 2014.
Provider Training available upon request:
- Behavioral Teaching Strategies
- FBA (Functional Behavioral Assessment):
Looking at the bigger picture
- strategies for teaching new skills &
reducing challenging behaviors
- Effective Inclusion
- Understanding Behavior
- Using Reinforcement Procedures Effectively
- Teaching New Skills
- Strategies for Reducing Challenging
- Strategies for Reducing Challenging
- Communication Intervention Strategies
- It’s Time to Pee!!! (toilet training)
|OKLAHOMA NEEDS YOUR HELP
All it takes is ONE.
Many Oklahomans with intellectual and developmental disabilities have no
friends or family involvement and the only people in their lives are
paid to be there. TARC is a private non profit that provides advocacy
for people with developmental disabilities. We have a statewide program
that matches volunteers one on one to people with developmental
disabilities who receive full-time services through Disability Service
Division of DHS and live in the community. Our volunteers see them at
least once a month, provide friendship, attend their yearly planning
meeting, and assistance with decision making. One of our primary goals
is to reduce their isolation and help them have happier and safer lives.
There are no special skills required and volunteers will be provided
training as well as ongoing support from a Volunteer Coordinator.
We currently have about 15 individuals in the Oklahoma City area in need
of a volunteer and about 150 statewide. Some of the service recipients
have been waiting for up to 5 or 6 years for a volunteer. We believe one
person can change the world for someone with a developmental disability.
Are you the One?
TARC Volunteer Coordinator
405-557-1878 or 405-760-6439
Epilepsy research received $129 million in federal funding in 2013.
That's $59 per person with epilepsy. There are more with EPILEPSY than
all the people with Multiple Sclerosis + Muscular Dystrophy +
Parkinson’s disease put together, but EPILEPSY only receives 31% of what
they receive in federal research funding. Our intent is certainly not to
take research funding from any other disease, because they all need more
support! We just want EPILEPSY to get a fairer share. We journey to D.C.
each year to join our Epilepsy Foundation in advocating for more $ for
research. Like and Share to show you want EPILEPSY to get a more equal
share. #EndEpilepsy — with Ryan Thomas.
|ZEUS AND THALIA ARE PURPLE
WE ARE PURPLE PROUD - WHAT ABOUT YOU?
EPILEPSY ASSOCIAION OF OKLAHOMA
Photo courtesy of Tanya Beaven
|BOOK BY SHIRLEY BRACKEN
Congratulations- Shirley Bracken
The Epilepsy Association of Oklahoma is very lucky to know this amazing
I'm proud to say Shirley Bracken is part of our team here at the
Epilepsy Association too.
Shirely runs a support group in Ponca City and speaks wherever she can
Did I mention she is an author now!
Shirley Bracken has written an amazing book on her journey and having
NOW AVAILABLE IN PAPERBACK BOOK!
ORDER THROUGH THE EPILPESY ASSOCIATION OF OKLAHOMA
DIRECLY AT THE LINK BELOW
THANK FOR YOUR SUPPORT!
To find: She Laughs With Demons
It's an ebook: ebook sites,
Barnes & Noble and
Price is around $9.99
Epilepsy demons have names: Ignorance, Intolerance, Discrimination and
Apathy. Epilepsy isn’t a pretty disorder. People would rather turn their
heads and pretend not to see a seizure. Shirley shares her struggles
with Epilepsy through stories and poems. She mixes perseverance with
splashes of laughter; despair with splurges of hope. Through her
journey, she keeps her faith. She knows that today the Demons will not
Shirley will donate a portion of all
sells from her book to the
Epilepsy Association of Oklahoma, "THANK YOU"!
Proud of you Shirley!
|YOUNG ADULTS SUPPORT GROUP
EPILEPSY SUPPORT GROUP
||This is an AMAZING site for people with EPILEPSY. If you
have been recently diagnosed or been living with EPILEPSY for a
while, PLEASE visit this site. You're NOT alone.
Talk About It.org created by Greg Grunberg (star of LOVE BITES,
HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top
health care experts to end the misperceptions and misunderstanding
about epilepsy and seizure disorders. Greg Grunberg, whose eldest
son has epilepsy, has dedicated his time, energy and passion to
working toward ending the stigma around epilepsy and bringing public
focus on the need to find a cure and to help give a voice to
people living with epilepsy. To get more people talking about