Helping Oklahomans with Epilepsy

 

What's New

 
 

Go To The Events Page For Details

Events

   

 

Donate Now

 
 

Your Donations Are Appreciated

We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Emergency Seizure Medication Assistance & Discount Drug Cards
2) Education About Seizures For Schools, Communities & Work Force
3) Monthly Newsletter
4) Website With Resources & Epilepsy Facebook
5) Annual Epilepsy Camp & Health Fairs To Educate
6) Support Groups Throughout Oklahoma



GiveSmartOKC
You May Also Donate By Check,
Please Make Payable To:

Epilepsy Association of Oklahoma
11212 N. May Ave. Suite 108
Oklahoma City, OK. 73120
   

 

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Welcome to the Home of the Epilepsy Foundation of Oklahoma

 
 

A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone


Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.

“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”

OUR MISSION STATEMENT
Our mission of the Epilepsy Association of Oklahoma is to:

A – S – A – P
A - Raise Awareness
S - Service To Community
A - Advance / Fundraising
P - Participate

  • Emergency Seizure Medication Assistance & Discount Drug Cards
  • Education About Seizures For Schools, Communities & Work Force
  • Office Staff & Monthly Newsletter
  • Website With Resources & Epilepsy Facebook
  • Annual Epilepsy Camp & Health Fairs To Educate
  • Support Groups Throughout Oklahoma

    EPILEPSY – PREVENT, CONTROL & CURE EPILEPSY THROUGH SERVICES...
    LET  THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA HELP YOU!





I call epilepsy a “stealth” disease, but it’s difficult to imagine how so few people can know about a disease that affects so many. For example, few people know:

  • Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
  • In America, Epilepsy is as common as Breast Cancer, and takes as many lives.
  • Almost 500 new cases of Epilepsy are diagnosed every day in the United States.
  • Epilepsy affects 50,000,000 people worldwide.
  • One in 100 people will develop Epilepsy.
  • One in 10 people will suffer a seizure in their lifetime.
  • This year another 200,000 people in the U.S. will be diagnosed with Epilepsy.
  • Each year over 125,000 to 150,000 are newly diagnosed with Epilepsy.
  • 30% of those diagnosed are children.
  • Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors.
  • For many soldiers suffering traumatic brain injury on the battlefield, Epilepsy will be a long-term consequence.
  • In two-thirds of patients diagnosed with Epilepsy, the cause is unknown.
  • In over 30% of patients, seizures cannot be controlled with treatment.
  • Uncontrolled seizures may lead to brain damage and death.
  • Up to 50,000 Americans die each year from seizures and related causes.
  • The mortality rate among people with Epilepsy is two to three times higher than the general population.
  • Risk of sudden death among those with Epilepsy is twenty-four times greater.
  • Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production.
  • Historically, epilepsy research has been under-funded. Each year NIH spends $30 billion of medical research, but just ½ of 1% is spent on epilepsy.
  • The Federal government spends much less on Epilepsy research compared to other diseases, many which affect fewer people.
  • St Valentine is the patron saint of people with epilepsy

 

Free Epilepsy Symposium For The Tulsa Area


The Epilepsy Association/Foundation of Oklahoma is putting on a FREE Epilepsy Symposium for the Tulsa area.

Could You Use Some Help: New to Epilepsy or Still struggling with control of my Seizures?

·         Support for patients and families living with Epilepsy and learn how others manage!
·         Have Trouble Living with Seizures?
·         I’m the only one that knows what it is like to have Seizures!
·         How could this happen to us?
·         Ask the Doctor QUESTIONS?

Location:  Education Center At Saint Francis

          6161 South Yale Avenue
          Tulsa, OK 74136


Eventbrite Sign Up: Click Here
Date: Saturday July 23, 2016  Time: 10 am – 3 pm

Presenters & Time / Starts at 10 am

2 hr.      Dr.Abdelmoity MD
1 hr.      Gene DX (Genetic Testing) – Genetic Counselor
30 min.  Ambucs
20 min.  Oklahoma Family Network 
20 min.  NAMI
20 min.  Sooner Success/SibShops 
             Epilepsy Foundation of Oklahoma

Our Doctor:

Dr.Ahmed Abdelmoity MD
Chief Section of Epilepsy and Neurophysiology
Director of the Clinical Neurophysiology fellowship program
Associate Professor of Pediatric Neurology at UMKC
Children's Mercy Hospitals and Clinics

 


CAN PROJECT IN OKLAHOMA


CAN PROJECT IN OKLAHOMA
 YES You CAN Be Apart Of This Project

Community Action Network  Mission:

The core principle of the Community Action Network for Epilepsy is to establish volunteer groups across the country. The groups will support individuals living with epilepsy by enabling and advancing the mission of the Epilepsy Foundation. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Involvement where you live and work creates partnerships that raise awareness about epilepsy and the programs the Foundation provides. You have the opportunity to support those with epilepsy by bringing programs and services directly into your communities. Whether it’s creating awareness, informing people about services, discovering new fundraising opportunities, or participating in innovation and public policy advocacy, these powerful Community Action Networks build lasting relationships in your neighborhood.


Jonathan’s Story: Promise to Livy 

  

"Jonathan Scheinman leads the national Community Action Network program"

If You Would Like To Be Apart Of EPILEPSY AWARENESS In Oklahoma, Please Contact the Epilepsy Foundation Of Oklahoma Office To Learn More:

405-463-0673

 

 

Epilepsy Association of Oklahoma Merges With The Epilesy Foundation of America


Update from the Executive Director of the NEW "Epilepsy Foundation of Oklahoma"

Welcome and thank you for visiting the Epilepsy Foundation of Oklahoma Website, Newsletter and Facebook page. We are honored that you have joined us, and I hope you will find all the information you need here.

This year 2016, the Epilepsy Foundation of Oklahoma celebrated a great victory. After 38 years of operating independently we became a chapter of the Epilepsy Foundation of America. With their unwavering support and assistance we'll be able to make tremendous strides in our community.

In my role as Executive Director, I have the privilege of working with wonderful doctors and members of our community who strive to improve the lives of those living with epilepsy every day. I will continue my fight in raising AWARENESS, SERVICE to our community, our ADVANCEMENT in fundraising and PARTICIPATION in activities throughout the state, with the help and support of the Epilepsy Foundation of America.

We are committed to operating with an abundance of energy to bring our members information and referral services they need. We are passionate about educating the community about seizures and epilepsy, in order to reduce the stigma that many individuals face.

Thank you for your on going support throughout the years and always remember YOUR NOT ALONE and we're here to help.

I'm very excited for the future of the new Epilepsy Foundation of Oklahoma

Jenniafer Walters
Executive Director






PROUD SPONSORS OF THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA



THANK YOU FOR YOUR SUPPORT!



CALLING ARTISTS WITH EPILEPSY



CALLING ARTISTS WITH EPILEPSY


2016 Hidden Truths, The Mind Unraveled
Juried Art Show Competition



Applications online at
www.epilepsy.com/hiddentruths
Open to Artists with Epilepsy - No Entry Fee
Entries Due July 1, 2016
__________________________________________________________

Acrylic, Oil, Drawing/Pastel, Watercolor, Sculptures,
Digital and Mixed Media
__________________________________________________________

Selected Pieces Will Be Featured and On Sale at the
2016 Hidden Truths, The Mind Unraveled Art Show
October 8, 2016


ontact Dr. Julie Thompson-Dobkin at

Featured artwork: "Freudian Sunrise" by Vincent Buchinsky. View more selected pieces on our website


Knowledge of Epilepsy and Risk Factors Survey



Knowledge of Epilepsy and Risk Factors Survey


To help us continue enhancing epilepsy.com, we are asking our users for a better understanding of what you know about the impact of epilepsy and seizures. Your answers to this survey will help us build a better website to help you manage your seizures.

Take the survey »


A SERVICE DOG FOR BRYNLEE
Brynlee


Like most girls her age, Brynlee likes to play dress-up, play with dolls and play with her brothers and sisters. When Brynlee was 2 years old she began having seizures and was later diagnosed with epilepsy. Since that time she has been on 6 different anti-seizure medications and gone through numerous tests and hospitalizations and we still do not have effective seizure control. She has multiple types of seizures at night and during the day. We have decided to get Brynlee a service dog. The dog will alert us to seizures at night and help her if she has a seizure at school or away from home. The training of a service dog is time consuming and very expensive. Because of this we will be accepting sponsors and holding various fundraising events over the next few months. Thank you for your prayers, support and encouragement!
 
PLEASE HELP SPONSOR OR DONATE:
CLICK HERE


SOMETIMES I GET THE WIGGLES

DOES YOUR CHILD HAVE THE “WIGGLES”?



ONE OF OUR VERY OWN EPILEPSY ADVISORY MEMBER WROTE A BOOK
ON EPILEPSY, “GREAT JOB” ANDEE COOPER. IF  YOU WOULD LIKE TO
PURCHASE A BOOK PLEASE CLICK THE LINK BELOW.

Click Here To Order Her Book On Amazon 

 You can find information at www.AndeeCooper.com

PR2 SYSTEMS FUNDRAISING FOR THE EPILEPSY FOUNDATION OF OKLAHOMA




pr2TM Systems is a nutritional supplement company, dedicated to the health and performance of athletes who compete at any level of intensity, as well as individuals interested in maximizing their health and nutrition. pr2TMproducts consist of great tasting, whole protein and vitamin supplements, and were developed by a former Olympic, collegiate and professional athletic trainer.

Daniel L. Dodson, Ph.D., A.T.,C. has developed pr2 products based on his research and experience with athletes and their specific recovery needs. pr2TM products are designed to promote efficient recovery from exercise and daily activities by strengthening the immune system and supporting the health of muscles and joints. Whether by capsule form or powder in a ready-to-mix drink formula, pr2TM provides a superior blend of nutrients, including top-quality whey protein isolate as sole source of whole protein, an exceptional blend of amino acids and an outstanding vitamin profile, including Vitamin E, D, B6, B12, folic acid and biotin. pr2TM Systems has always been committed to the highest standard of quality products.


Website: www.pr2systems.com

CODES:

OKEpilepsy  -45% off your purchase  (no donation for this one, it is for the epilepsy families that would like to try the product)

OR

Epilepsy  -15% off your purchase (10% of Gross Purchase will be donated to the Epilepsy Association/Foundation of Oklahoma) PR2 Members
 

Joe Dorman: has his discount code set up too, YES That Joe Dorman!

Joe  -15% off your purchase (10% of Gross Purchase will be donated to the Epilepsy Association/Foundation of Oklahoma)
 

Any Questions Please Contact:
 

Daniel Dodson PhD, ATC

Founder

PR2 Systems, LLC

405-513-1195



COMMUNITY HEALTH CHARITIES
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH CHARITIES

BUILD CULTURES OF COMMUNITY INVOLVEMENT

FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
 “EPILEPSY ASSOCIATION OF OKLAHOMA”

CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY

CHC – PUBLIC SECTOR CAMPAIGN #8007
OKLAHOMA STATE

FREDDYS PHEOMENAL FUNDTRASERS

.

Thank you Freddy's, they have opened the EAO fundraiser for all day. If you go to this location and mention I am here for the Epilepsy Association Fundraiser, they will donate 15% of your purchase to us and you dont need a flyer.

(Click Image to open PDF)

END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.
VNS MONTHLY CONFERENCE CALL

EPILEPSY ASSOCIAVNS monthly conference callION OF OKLAHOMA

 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to help give a voice to people living with epilepsy. To get more people talking about epilepsy!